Life-Limiting Diagnosis Support
​
♥  ​​Carrying to Term
carryingtoterm.org
When you’re facing a prenatal diagnosis of a life-limiting condition, the decision to carry a pregnancy to term is often accompanied by a range of questions and emotions. Carrying to Term is dedicated to helping you gather the support, tools, and resources necessary to navigate the months ahead.

♥  ​​Abel Speaks
abelspeaks.org
We seek to provide comprehensive care for our families through their season of pregnancy and beyond. We tailor our support for each individual family.

♥  ​​Love Not Lost
lovenotlost.org
Offers a free portrait session for those facing a terminal diagnosis that celebrates life, preserves memories, and captures the love that surrounds them. ​

♥  ​​My Angel's Heartbeat Bear
myangelsheartbeatbear.com
Beautiful stuffed animals that come with a 20 second recorder to store a heartbeat even through battery changes.

♥  ​​Prenatal Diagnosis 
prenataldiagnosis.org
​A group of experienced professionals who have come together to create this website to provide you with a safe place to find the information and support you need through the journey of a prenatal diagnosis and beyond.

♥  ​​Sufficient Grace Ministries
sufficientgraceministries.org
Offers perinatal hospice support for families receiving a life-limiting diagnosis in pregnancy and emergent support for those who experience the loss of a baby at any gestational age.

​♥  Cherishing the Journey 
cherishingthejourney.org
Florida- Bereavement Doula Services

♥  I Will Carry You
facebook.com/iwillcarryyoubbds
Louisiana- Bereavement Doula Services

♥  Hugs For Harrison
hugs4harrison.com
Georgia- Life-Limiting Diagnosis Pregnancy Support

Support for Other Difficult Diagnoses
​
♥  ​​A Heartbreaking Choice
aheartbreakingchoice.com
Offers support to those who have undergone a pregnancy termination for medical reasons - poor prenatal diagnosis, problems with their own health, or for the health of a sibling (selective reduction). 

♥  ​​NORD (National Organization for Rare Disorders)
rarediseases.org
Provides information on rare diseases and a database of support organizations.

♥  ​​NTSAD (National Tay-Sachs & Allied Diseases Association)
ntsad.org
Offers support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.

♥  ​​Poor Prenatal Diagnosis (Baby Center Community)
community.babycenter.com/groups
Have you gotten unexpected results from prenatal testing? Find support and talk about your options with others in similar situations.

♥  ​​SOFT (Support Organization For Trisomy)
trisomy.org
A network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
​

​Memorial Photography 

♥  ​​Eden-Digital Photo Restoration 
https://www.facebook.com/profile.php?id=100089207462206
Professional and compassionate photo retouching service to preserve precious moments without the distraction of tubes, tape, and other medical supplies.
​
♥  ​​Now I Lay Me Down To Sleep (NILMDTS)
nowilaymedowntosleep.org/families/considering-our-services
Administers a network of more than 7,000 volunteer photographers in the United States and 25 countries. At a family's request, a NILMDTS Affiliated Photographer will come to your hospital or hospice and conduct a sensitive and private 30-45 minute portrait session. Your collection of heirloom portraits are professionally retouched and presented to you via free digital download within 6-8 weeks.
​

Financial Assistance: Cremation, Funeral, and Burial
The organizations listed below are dedicated to financially assisting with final arrangement costs for babies and young children. Visit them online for requirements and to apply for assistance.

♥  ​Angel Names Association 
angelnames.org
SEOLE program provides assistance with autopsy, funeral, burial, and cremation expenses for stillborn babies at least 20 gestational weeks old.

♥  ​Born Into Heaven Foundation
bornintoheaven.org
Assists with funeral cost for stillborn babies in the state of Alabama.

♥  ​Children's Burial Assistance
childrensburial.org
Provides assistance to families for the burial of a minor child, aged 1 to 17 years. Assistance can be used towards the open and close of grave fees and cremation services.

♥  ​FlutterBy IzzyJane Foundation
flutterbyizzyjanefoundation.org
Assists with funeral costs for stillborn babies age 24 gestational weeks or more.

♥  ​Our Children's Blessing
ourchildrensblessing.com
Assists with cremation/burial, funeral, and medical bills for the loss of a baby age 20 or more gestational weeks and infants up to 1 year old. First preference will go to residents of the Texas Panhandle area. Other applications will be considered if financial assistance is available.

​♥  Raising BLUE
facebook.com/RaisingBLUE04142012
Assists with funeral costs for stillborn babies. For assistance, call (859) 814-6190 or reach out via Facebook.

​♥  Rhett Sullivan Foundation
rhettsullivan.org
Assists with funeral, burial, monument, and counseling costs for the loss of a baby age 20 weeks gestation up to 2 years old. Rhett Sullivan Foundation is based in Texas and will focus on providing service to those in Texas first. They are able to provide funding to other locations upon review by their Board of Directors.

​♥  Skyler's Gift Foundation
skylersgift.org
Assists with funeral and burial or crematory costs for babies born at or after 22 gestational weeks and then passed away in the NICU. You must apply online within 14 days of your baby's passing.
​
​♥  The Luca John Foundation
lucajohnfoundation.com
Assists with funeral costs for stillborn babies or infants age 12 months and younger.

♥  ​The TEARS Foundation
​thetearsfoundation.org/chapters
Assists with financial expenses associated with cremation, funeral, and burial.
​

​Financial Assistance: Medical Bills
The organizations listed below are dedicated to relieving the burden of medical bills associated with pregnancy and infant loss.

♥  ​​​Hayden's Helping Hands
​haydenshelpinghands.com
Assists parents in all 50 US states with medical expenses after the birth of a stillborn baby (20 or more weeks gestation.) All qualifications must be met for approval.

♥  ​Our Children's Blessing
ourchildrensblessing.com
Assists with medical bills associated with the loss of a baby age 20 or more gestational weeks and infants up to 1 year old. First preference will go to residents of the Texas Panhandle area. Other applications will be considered if financial assistance is available.

♥  ​Hugs 4 Harrison
www.hugs4harrison.com
Assists with medical bills associated with the loss of a baby in Georgia.
​

Birth Injury Resources

♥  ​Birth Injury Guide
birthinjuryguide.org
Works with professional writers and researchers, medical providers, attorneys, and other birth injury experts to produce the most comprehensive birth injury information source available.

♥  ​Birth Injury Center
birthinjurycenter.org
Assists anyone who has been affected by a birth injury. Provides a compilation of information around the different types of injuries.
​

Certificate of Birth Resulting in Stillbirth / Certificate of Stillbirth
​Certificates can be requested after you have been discharged and your hospital/physician has filed the necessary paperwork. At your request, your State Office of Vital Records can issue you a "Certificate of Birth Resulting in Stillbirth" or "Certificate of Stillbirth" to record and memorialize the birth of your stillborn child. Because laws vary by state, so do the certificates available to you. Some states offer certificates for babies less than 20 gestational weeks old. Visit state websites linked below for details and forms.

♥  ​Alabama
alabamapublichealth.gov/vitalrecords
Available: Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​Florida
floridahealth.gov/certificates
Available: Certificate of Nonviable Birth (10-19 weeks gestation), Certificate of Birth Resulting in Stillbirth (20+ weeks gestation), or Fetal Death Certificate (20+ weeks gestation)

♥  ​Georgia
​dph.georgia.gov/about-vital-records
Available: Certificate of Birth Resulting in Stillbirth (CBRS) or a Death Certificate, either in lieu of the CBRS or in addition to it.

♥  ​Idaho
healthandwelfare.idaho.gov
Available: Stillbirth Certificate (20+ weeks gestation), Miscarriage certificate

♥  ​Kansas
kdheks.gov
Available: Certificate of Birth Stillbirth 

♥  ​Kentucky
chfs.ky.gov
Available: Certificate of Birth Stillbirth

♥  ​Louisiana
ldh.la.gov
Available: Certificate of Birth Resulting in Stillbirth

​♥  ​Minnesota
health.state.mn.us
Available: Certificate of Birth Resulting in Stillbirth  (20+ weeks gestation)

♥  Mississippi
msdh.ms.gov
Available: Certificate of Birth Resulting in Stillbirth

♥  ​Nebraska
dhhs.ne.gov/Pages/Vital-Records
dhhs.ne.gov/Pages/Nonviable-Births
nebraskafamilyalliance.org
Available: Certificate of Nonviable Birth (less than 20 weeks gestation), Certificate of Birth Resulting in Stillbirth

♥  ​New York
health.ny.gov
Available: Fetal Death Certificate (official record of birth and death), Stillbirth Certificate (20+ weeks gestation)
​ 
♥  ​Ohio
ohio.gov
Available: Fetal Death Certificate , Stillbirth Certificate
​ 
♥  ​Oklahoma
ok.gov
Available: Certificate of Birth Resulting in Stillbirth (12+ weeks gestation)

♥  ​Pennsylvania
health.pa.gov
Available: Fetal Death Certificate (16+ weeks gestation), Stillborn Birth Certificate (noncertified commemorative document)

♥  ​Tennessee
tn.gov
Available: Certificate of Birth Resulting in Stillbirth

♥  ​Texas
dshs.texas.gov
Available: Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​Utah
vitalrecords.utah.gov/records/early-term-stillbirth
​vitalrecords.utah.gov/records/stillbirths-fetal-deaths
Available: Certificate of Early Term Stillbirth (16-19 weeks gestation), Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​Virginia
vdh.virginia.gov
Available: Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​West Virginia
wvdhr.org
Available: Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​Wisconsin
dhs.wisconsin.gov
Available: Certificate of Birth Resulting in Stillbirth (20+ weeks gestation)

♥  ​Wyoming
health.wyo.gov
Available: Fetal Death Certificate
​

​Online & In-Person Support

♥  ​​​​Rachel's Gift Pregnancy and Infant Loss Support Groups
Click here for current schedule of our in-person and online groups
​
♥  ​​​​A Heartbreaking Choice
aheartbreakingchoice.com
Offers support for women who have made the heartbreaking choice to terminate a much wanted pregnancy.

♥  ​​​​CLIMB (Center for Loss in Multiple Birth)
climb-support.org
Support for those who have experienced the loss of one/both twins or more multiples at any time from conception through birth, infancy, and childhood.
​
♥  ​​​​First Candle
firstcandle.org
​Provides a 24 Hour grief line and peer-to-peer online support groups for miscarriage, stillbirth, and sudden infant death.

♥  ​​​​MEND (Mommies Enduring Neonatal Death)
mend.org
Offers online and in-person support groups across the US.
​
♥  ​​​​National Share
nationalshare.org
(English and Español) A community for anyone who experiences the tragic death of a baby. Serving parents, grandparents, siblings, and others in the family unit, as well as the professionals who care for grieving families. Share is a national organization with over 75 chapters in 29 states. Services include bed-side companions, phone support, face-to-face support group meetings, resource packets, private online communities, memorial events, and more.

♥  ​​​​PALS (Pregnancy After Loss Support)
pregnancyafterlosssupport.org
As a mom pregnant after a loss you don’t quite fit into the loss groups anymore, but you also don’t feel like you fit in the “normal” pregnancy community. PALS helps fill that gap with online support groups and in-person Meet-Ups to support you through trying to conceive, pregnancy, and parenting after loss.

♥  ​​​​Still Birth Day
stillbirthday.com
Support for birth in every trimester.

♥  ​​​​Still Mothers
stillmothers.com
Raises awareness surrounding the issues of babyloss, secondary infertility, and the choice to remain childless after loss. Offers a space where mothers can connect, process grief, and find healing without the additional stress and heartache of pregnancy, birth, and motherhood after loss conversations.

♥  ​​​​Still Standing Magazine
stillstandingmag.com
For all who are grieving child loss and infertility.

♥  ​​​​The Compassionate Friends
compassionatefriends.org
Offers support via local state chapters, online support communities, and private facebook groups.
​
♥  ​​​​Womb Warriors Creative
wombwarriorscreative.com
WWC's mission is to provide support for women, connect through creative expression, find healing in that creative process and share our works of art in an effort to de-stigmitize women's health issues.

​♥  ​​​​Key Counseling Group
keycounselingatl.com
Support for miscarriage, grief and loss, infertility, couples and more.

♥  ​Hugs 4 Harrison
www.hugs4harrison.com
Assists with medical bills and individual grief counseling associated with the loss of a baby in Georgia.
​

Baby Product Mailing List Removal

♥  ​​​​National Do Not Mail List
directmail.com

A letter to the addresses below will stop about 75% of baby-related mail during the first year after a baby's death. The Mail Preference Service division of the Direct Marketing Association (known as DMA) compiles a list of people who do not want junk mail. DMA provides their compiled 'Do Not Mail' list to any company that requests it.

Tips: Write to Mail Preference Service and request your name and address be deleted from all mailing and marketing lists. Provide them with three spellings or variations of your name, as well as with any other names at your address (including previous occupants). They will retain your information for five years. If you wish, at that time you should write again. Be sure to write when you move. Include your name and address. Be sure to sign and date your letter.

Mail Preference Service​
c/o Direct Marketing Association
P.O. Box 9008
Farmingdale, NY 11735-9008

​Mail Preference Service​
c/o Direct Marketing Association
6 East 43rd Street
New York, NY 10017-4609

Memorial Items

♥  ​​​​Jewelry Keepsakes
jewelrykeepsakes.com
Cremation jewelry keepsakes and pendants

♥  ​​​​Laurelbox
laurelbox.com
Gifts for grieving mothers

♥  ​​​​Molly Bears
mollybears.org
Personalized weighted teddy bears for families coping with infant loss. Help to alleviate Empty Arms Syndrome. Orders are accepted online on the 15th of each month.

♥  ​​​​Nelle & Lizzy
nelleandlizzy.com
Personalized memorial jewelry.

♥  ​​​​Shaniya's Gift
https://shaniyasgift.org
Resources for grieving families in New Jersey.

♥  ​​​​Romantic Work
romanticwork.com 
romanticwork.com
Cremation jewelry and keepsakes.

♥  ​​​​Imrsanl
Imrsanl page
Cremation jewelry.

♥  ​​​​Get Name Necklass
getnamenecklaces.com
Personalized rings and necklaces.

♥  ​​​​Perfect Memorials
perfectmemorials.com
Urns and cremation jewelry.

♥  ​​​​Keepsake Mom Breastmilk Jewelry
keepsakemom.com
Breastmilk necklace.

♥  ​​​​Miranda's Keepsake
etsy.com
Breastmilk Jewelry.

♥  ​​​​The Empowered Mama
empoweredmama.shop
Breastmilk Jewelry.